The PCRI Helpline is unique in the way it interacts with callers seeking help in understanding and dealing with this disease. The “callers” include men with prostate cancer, their families and friends, or physicians. The overwhelming majority of the Helpline interactions, which reaches fifty phone calls, emails or faxes per day, pertain to education for a prostate cancer patient. The Helpline staff person (i.e. “Facilitator”) works with the caller to extract vital medical information, which is essential to assess the nature and extent of the disease so that they can provide information that is both accurate and relevant to the caller’s situation. In such a manner, they “facilitate” the patient’s communication with his physicians to obtain a successful outcome. The Helpline Facilitators provide medical information but do not give medical advice.
Call the Helpline at 800-641-PCRI (7274) or email: firstname.lastname@example.org
PCRI Facilitators have been intensely trained about prostate cancer by Dr. Stephen Strum and other PCRI Medical Advisors. They have also spent countless hours reviewing PCRI educational materials. They have access to a Board of Medical Advisors to obtain ideas and information pertinent to an individual situation. The Helpline staff reviews medical articles from The Journal of Urology, Urology, the Journal of Clinical Oncology, The Oncologist and Cancer to stay current with the latest developments in prostate cancer research and treatment. Moreover, educational group emails are sent to PCRI staff to highlight important concepts. Further, each Helpline Facilitator does continual additional research as needed to stay abreast of current developments.
There is no other prostate cancer education and research organization performing this function with a Board of Medical Advisors, trained in the specialty of prostate cancer, constantly educating and evaluating its Helpline staff.
Contact the Helpline:
To assist the staff in answering questions, we suggest that callers be prepared to provide some background information such as:
1. Patient’s Date of Diagnosis
2. PSA at time of Diagnosis
3. Gleason Score at Diagnosis
4. Prior and current Treatments
5. Current PSA
6. Patient’s location (US state or country)
When sending your initial inquiry by email, please do not send attachments.
The Helpline Staff:
Jan Manarite - Jan is the wife of a prostate cancer patient. She joined PCRI in October 2001 and works handling Helpline calls, e-mails and speaking publicly. Jan and Dominic’s story of empowerment has caught the attention of local newspapers, magazines, and TV stations. Her passion is to spread education about important PC issues throughout her neighborhood of Lee County. Jan can be reached in Sanibel, Florida at 800-641-PCRI or email@example.com. More about Jan.
Ferd Becker - Ferd Becker is an Active Surveillance patient who has worked with both Dr Stephen Strum and Dr Charles “Snuffy” Myers. He has a long family history of prostate cancer and became very educated about prevention, prostate MRI, color Doppler, and many other issues. Ferd is a semi-retired facial plastic surgeon from Florida.
David Derris - David was treated for prostate cancer in 1996 after being mis-diagnosed with the disease. His experience has motivated him to become a student of prostate cancer, and an advocate, educating men to become empowered to face the many challenges presented by a prostate cancer diagnosis. He has worked with the Maui Unit of the ACS, Maui and Oahu UsTOO Patient Support Groups, the Hawaii Prostate Cancer Coalition, and in 2004 with Harry Pinchot, Jan Manarite and Jim O’Hara at the PCRI. After completing the PCRI Mentoring Program in August of 2012, David was invited to rejoin the PCRI Helpline team. He lives in Honolulu.